Treatment for rare eye disease gives patients new hope
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Treatment for rare eye disease gives patients new hope
Saturday marks Rare Disease Day, a day to raise awareness for the millions of people battling rare diseases. Now, a new treatment for one of those conditions is giving patients hope. Here's a look at the medical breakthrough.
Feb 28, 2020
Rare Disease Stories
'Shaped my family’s life': Your rare disease stories
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2 weeks ago
Stars bravely sharing rare disease stories in 2025! #CelebHealth #OliviaNewtonJohn #SelenaGomez #LadyGaga #Awareness2025 | Star Moment
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121K views · 1.1K reactions | 7-year-old Luciana Wilken has fibrodysplasia ossificans progressiva (FOP), a very rare genetic disorder causing muscles and tendons to turn into bone. A mother recounts the moment she connected her daughter's symptoms to this rare disease after watching a documentary. It was like a jigsaw, she says, putting all the pieces together. #FOP #GeneticDisorder #RareDisease #MedicalMystery #Inspiration #Hope | Real Stories | Facebook
1:22
121K views · 1.1K reactions | 7-year-old Luciana Wilken has fibrodysplasia ossificans progressiva (FOP), a very rare genetic disorder causing muscles and tendons to turn into bone. A mother recounts the moment she connected her daughter's symptoms to this rare disease after watching a documentary. It was like a jigsaw, she says, putting all the pieces together. #FOP #GeneticDisorder #RareDisease #MedicalMystery #Inspiration #Hope | Real Stories | Facebook
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71.3K views4 weeks ago
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